Category: cancer

Renaming Grief and Other Shit

Published on by Donna Gray4 Comments

After a mostly sleepless night, I have a throbbing headache but have maxed out my painkiller quota for the next four hours.  Having sciatica issues makes it difficult to sleep.  I cannot get comfortable and my legs, (sometimes one, sometimes both) burn, tingle and ache.  Yoga and stretching are not helping and I have decided to seek some medical help and get them to look into what is going on with my lower back.   I am a light sleeper and one of the problems I had last night was hearing this strange scratching noise outside.  I lay awake in bed listening, trying to figure out what it was and then heard what sounded like a bear giving a frustrated long grunt, the dogs started barking and I flew out of bed. The dogs live outside and I don’t want them tangling with a frustrated bear.  Shawn and I are outside with flashlights having a look around, the dogs quieted down and we were left cold and wide awake. There is a beautiful creek right beside our property and the salmon are spawning so it is like a bear picnic at the edge of the yard.  Shawn thinks it was a raccoon, but he did not hear the noise the animal made.  I decided that he can think whatever he likes, but I heard a bear.

Okay, 2:45 am and I am wide awake.  We watch a little TV and head back to bed but the pain in my back and legs won’t let me get back to sleep.  So it is now 5am and I am still awake and in pain.  So I try meditating, becoming one with the pain, breathing into it, just breathing and finally drifted off to sleep for a few hours.  I don’t think people who have never dealt with chronic pain have any idea how debilitating and tiring it can be.  I look fine, you would not know that I have been in constant pain or discomfort for 3 weeks if you looked at me.  This happened to me about seven years ago and lasted for over a year.  Chiropractor visits, massage, acupuncture, yoga, and meditation were all part of my healing.  It got to the point where I could not put on my own pants, socks or shoes and was unable to lift my leg high enough to get in the tub.   I also could not drive because I could not move my foot quickly enough from the gas to the brake pedal and almost ended up in the ditch at the end of my driveway.  This was a year from hell.

However, it as nothing compared to the emotional, mental and spiritual pain I suffered when Howard was diagnosed with cancer and passed away a few months later.  While physical pain is a “damn pain” it has a different quality than grief and emotional pain.  It is not just the loss of someone you love, but also your hopes and dreams, and in my case my business, job and home as well.  Yes, it was my choice to close my business and to stop working.  I could have made other arrangements to take care of those things.  But, I did not have it in me to still manage those things behind the scenes while Howard and I navigated cancer world.  One thing that a lot of people do not realize is that the moment you or your loved one are diagnosed with a terminal or life-threatening illness is that the grieving can start immediately.  Life as you knew it has ended and you are thrust into a world full doctors, appts, chemo treatments, medications, and the never-ending supply of people who are only too happy to tell you what they think you should do, or criticize what you are doing.  Just navigating the medical system and being pushed to have this treatment or that treatment without being given enough information to make an informed decision had me wanting to pull my hair out and scream. The man I loved was dying and it seemed that some people, even those in the medical profession did not care, it was just another day at work for them.  He was just another cancer patient.  They did not know his story, or our combined story.  They did not know he had the biggest heart of anyone I knew and spent most of his life doing things for others or that he had finally started doing something he loved and was creating the most beautiful sculptures out of recycled metal. They did not know that I was terrified.  They did not know us and did not have the time or the desire in some cases to get to know us.  They did not know.

I made it my mission to let them know.  I talked to people, I annoyed some people, I got pushy with some people and I even told some people off.  They said I was angry.  Your damn right I was angry.  I was angry, terrified,  heartbroken, and I was watching this big strong man who was my rock waste away and there was nothing I could do to stop any of it.  One of the most annoying questions I was asked when people found out Howard had cancer was,” Oh, what type of cancer is it?”  What the hell does that matter?  I would tell them lung cancer and immediately their next question was “did he smoke”?  So if he smoked then he deserved to have this cancer, he brought it on himself.  If that was the case, then all assholes should get colon cancer, and heartless greedy people should have cancer of the heart, well they do have a type of cancer already, it is cancer of the soul.  Don’t be one of those people!  So my guy is fighting for his life and some people don’t ask if there is anything they can do, they just want to know what type of cancer he has so they can go to sleep at night knowing it will not happen to them because they don’t smoke.  Yup, I was a little angry.  But that is also one of the stages of grief, so are denial, bargaining, depression, and acceptance.  The experts in the field of grieving and loss bandy these stages around and some think it can all be summed up just like that.  The bad news is it is much more complex, sometimes you are in one stage, sometimes the stages overlap and other times (at least for me) there seemed to be whole new stages that had no label.

What are these new stages you ask? When the shit hits the fan make them laugh,  they will never know how torn up inside you are.  If you have read any of my earlier posts you may have the idea that I have a sense of humor and you would be right.  My sense of humor along with dear friends and family helped me get through one of the toughest periods of my life.  If you have a sense of humour use it, if you don’t then cultivate one and watch comedies that make you laugh or do whatever you need to do to laugh.  Laughter heals, even hysterical grieving laughter heals.  My sense of humour is a little warped sometimes and it is one of the ways I deal with life,  my inner comedian comes out. It is one of my strategies for coping with life.  It came out at my mother’s funeral, it came out at my father’s deathbed and it came out when the six of us ( Howard’s parents Pat and Bob, Me and 3 dear friends) were sitting in the living room with Howard waiting for the funeral home to come take his body away.  I sat on the bed beside him and did the only thing I was capable of doing at the time.  I told funny stories about our life together and we all cried and laughed together.  I was exhausted, I was heartbroken, I was relieved it was over, I was terrified and consumed with guilt for feeling relieved that it was over.  I made everyone leave around 4:30 am and collapsed on my bed.  I did not remember anything for six hours.

Did I mention, that I did not get much sleep last night?  Well, now I am really tired and having trouble getting my thoughts out through my fingers so I will end this here.  If you want to know more and haven’t already clicked on something more entertaining, then I will  let you know what I called the other stages in the next few days.  I think they should all be renamed.  All that is going through my head at the moment is the seven dwarves but that would be way too Disney for me. I think the stages of grief need some new labels that have a little edge and a little humor in them.  I definitely think one needs to be called, How dare you die and leave me here all alone to deal with this shit!  Can’t believe I just typed that but it is true.  Don’t judge too harshly.  Hi ho, Hi ho, it’s off to the pub I go.

Love you all

Donna

PS  That is one of Howard’s sculptures in the picture and one of my favorites!

Grief Part 682

Published on by Donna GrayLeave a comment

I will start this post by saying that I am no expert when it comes to grief. I have danced with grief a number of times from a young age to today, at 54 years of age. I say dance with it because grief has a rhythm to it that moves you. I have experienced the death of two grandparents, a number of friends, my baby girl, both my parents, my older brother and finally the man I loved and lived with for twelve years. Each experience was different and each person’s death brought about a change within me. Howard’s passing happened Sept 15th, 2015 and I have to say that his presence in my life and his exit from it has changed me in ways no other experience has. Howard’s life and death had a profound effect on me and in some ways I am still discovering what those are. I will tell you that the grief never ends but it changes over time and becomes more of a slow heart warming waltz instead of a heart racing paso doble that spins you around and shakes your world. Grief changes you and grief changes.

I am one of those people who cries when I am happy and laughs when I am sad. This is not to say that I do not cry when I am sad. Howard’s death brought me to my knees, but I did not cry, I wailed a deep soul shattering sob that robbed me of breath and thought. I would cry myself to sleep at night and when I woke up in the morning for just a moment I would forget that he was gone and then the sobbing would begin as reality came into focus again. I cried at the grocery store, I sobbed in my car and had to leave a few places, (the bank for one) when my emotions overtook me. I wouldn’t change a minute of the grief. It was heartbreaking but it was also heart opening. I do not see the world in the same way, my vision is clearer because I see with my heart, not my eyes. So a year and a half later something will catch me by surprise and the loss of him will overwhelm me. I was visiting the hair salon that I frequent a few weeks ago and a song came on the radio there that had special meaning to me and Howard and the tears started flowing. This is a song by Shawn Mendes called “Never Be Alone” and here are some of the lyrics:

I promise that one day I’ll be around
I’ll keep you safe
I’ll keep you sound
Right now it’s pretty crazy
And I don’t know how to stop
Or slow it down
Hey
I know there are some things we need to talk about
And I can’t stay
Just let me hold you for a little longer now
Take a piece of my heart
And make it all your own
So when we are apart
You’ll never be alone
You’ll never be alone
You’ll never be alone
When you miss me close your eyes
I may be far but never gone
When you fall asleep tonight
Just remember that we lay under the same stars
And hey
I know there are some things we need to talk about
And I can’t stay
Just let me hold you for a little longer now

Howard passed this song on to me through a friend who is a medium. This happened while he was still alive but could not talk much. He did manage to say a lot to my friend in spirit while he was still alive even though they did not really know each other well. He chose his words sparingly at this point and did not waste his energy. Well, I played the song as Howard lay in his bed in our living room, while a few friends were visiting, Howard had his eyes closed with a big smile on his face and his toes were dancing to the music while the rest of us had tears streaming down our faces. After Howard was gone every time I started my car (for a few weeks) this song would be on the radio, it was heartbreaking and heartwarming at the same time. It made me cry and reminded me that I am never alone.

So, here I am early in the morning finishing a post that I started over 4 months ago. I want you to know that I still miss him and think about him every day. I also want you to know that some days I still struggle to find my place in this new life I have created. Sometimes I still struggle. Howard’s artwork graces the yard and walls of the new home I share with Shawn the new amazing man in my life. He has brought much joy and laughter to my life. He loves me, he challenges me and encourages me to dream and grow. But, grief is a funny thing and I don’t think it ever goes away or is something you can overcome. I believe that it is always there, always a part of you. Grief changes you and grief changes you again, but your dance with it also changes the grief.
Now, it is not so much about the loss of Howard in my life, but the end of the life that Howard had cut short when he was just beginning to blossom as an artist and had found something he was so passionate about.

I believe that I have a difficult time finishing this post simply because there is no end to this story. Nor can I sum it all up and leave you with a something to think about. This is just a snapshot of day 682 of grief.

Be kind
Love ya
Donna

Ancestral Influence

Published on by Donna Gray1 Comment

Got a phone call this morning at 5 am. My first thought was something is wrong. Turns out one of my cousins back east called my cell phone by accident. So we had a brief conversation and I sent him a text to make him laugh. Started my day with unfounded worry and a smile. I was worried because I have a nephew who is ill and going for surgery in a few days. This got me thinking about the wonder of our DNA and genetics. I know, how does an accidental phone call lead to a post on genetics.

Our family has a genetic condition called hereditary nonpolyposis colorectal cancer (HNPCC) or Lynch syndrome, which may or may not predispose you to a number of different cancers the main one being colon cancer. Four members of my immediate family have had colon cancer so it looks like the odds are not in our favour. So that is the downside to genetics. I have regular screening for two types of cancer and after testing have found that I do not carry the gene that causes this. Other members of my family have not been so lucky. The gene has been passed down through our maternal line of ancestors. I on the other hand take after my father’s side of the family. I am the spitting image of my father and my grandmother. So this stuff makes me think about what else we inherit from our long line of ancestors.

What is it that makes us who we are? Do we inherit personality traits as well? I would say yes to this. I have a cousin who is about 16 years older than me and when he was here for a visit a few years ago we discovered that we have some of the same quirks. I am constantly losing my coffee or tea mug and never close a drawer fully. His wife started laughing because he does the exact same thing. Family trait or coincidence, we may never know. I thought it was hilarious and we still talk about it nine years later. As far as learned traits go I would say I am a mixture of both parents. I grew up being influenced by them and was taught to see the world through two very different sets of eyes and life experiences. They helped shape the person I am today. I on the other hand am wholly responsible for who I am today and like to think that I have refined and expanded the world view they had. So are we simply the sum of our experiences? You can have two people experience the same upbringing in the same household and they move through the world in completely different ways. I look at my own brother and sisters and marvel at how we are so alike in some ways and so different in others. I also marvel at how each of has a unique memory of the same event from our past.

I have never felt like I fit into my family. I used to wonder if I was adopted but looked too much like my Dad for that to be the case. When I danced down the wonderful path of discovering my ancestors during my genealogical research I discovered some interesting things. My love for fiddle music, my writing, my ability to sketch, and having a head for numbers, are all things that one of my ancestors excelled at. I am a great mishmash of everyone who has contributed to my DNA. Magical isn’t it?

I also believe that my cells and DNA have their own memories of all the things that my ancestors both close and distant experienced. Even my intuitive abilities are inherited and handed down through my family line. Sometimes these things seem to have skipped a generation or two but if I look closely enough they are there in all of us. So I have chosen to hone my writing skills and my intuitive abilities, others in the family have chosen a different path. My Grandmother whom I have never met, she passed away when my mother was a baby, comes to visit in spirit and she usually shows up when I am writing or doing some piece of creative work.   Does she have this connection to me because I am pursuing things that she loved? I like to think so. She spends a lot of time looking over my left shoulder when I type. She is nodding her head right now and says that I am doing things that she wanted to do but never got the chance to. So I guess in some way the grandmother I have never met in person has influenced me and continues to do so with her presence in spirit. She also tells me that my intuitive abilities come from her line as well as my father’s side of the family. A double whammy! So the predisposition for colon cancer, as well as artistic and intuitive abilities are handed down from generation to generation.  Nothing is ever all good or all bad. The truth of it all is somewhere in the middle. So I choose to walk in the middle of the path, the view is much better from here.

Peace and love to all
Donna